If I had Fetal Alcohol Spectrum Disorder (FASD) I would hope that people would know that I would not be FASD but a person who happens to have this disability. That, just as with anyone who has any sort of condition or disability, I am unique and until you know me you don’t KNOW me! That I may behave certain ways due to my brain injury but I am not purposefully acting out. I am experiencing situations where I may not be able to do things you want me to but it is not because I am refusing to do them.
If I had FASD I would hope that everyone would understand that this is a permanent disability and I cannot outgrow it. You cannot parent it out of me or make me learn to not have this condition. I would always need to have people help me with certain things and I may at times resent this but that does not mean you should stop trying. Please remember that I want to please you…I want to fit in.
If I had FASD I hope that there is a future for me. A place that is safe for me and people who understand. Who take the time to get to know me and to get to understand this condition that I have.
I am blessed I was NOT prenatally exposed to alcohol. But honestly I could have been. There have been so many mixed up messages to women of child bearing age. We have not touched on how to truly support women who are dealing with alcoholism. Somehow we have to get out the right messages. We have to work toward a realistic approach to prevention…realizing that some of the women are women who happen to be dealing with having the disability of FASD themselves. Until we deal with this we will never prevent FASD or help anyone who is dealing with it.
If I had FASD I would be so happy that you bothered to read this and that you passed it on. Spread the word. FASD is preventable…let’s work on it.