Wish I had a temperature control…


Temperature scale

Image via Wikipedia

I know in the past I have talked about temperature in regards to emotional temperature in people with Fetal Alcohol Spectrum Disorder (FASD) but tonight I just need to mourn another thing that is not easy or at times fair for doodlebug.  He loves to be outside and play with the other kids.  It means so much to him to be able to ride a bike without training wheels, to be able to search for dinosaurs and to just be out in the air.  He has among his many medical issues the inability to properly regulate his body temperature that is another issue from his brain damage from FASD.  If he gets too cold his body temperature can drop dangerously and in the reverse if he gets too warm it can rise to a dangerous level.  One of the issues when it raises is that he gets terrible nosebleeds and/or seizures.

Today the kids have all played outside and had so much fun.  Doodlebug wanted to be out there so badly and did play for awhile.  He came in and ended up with a half hour long nosebleed.  Even with the ice packs and the cold bath it was so hard to get it to stop.  Now he is so out of it he can barely function.  I hate that he cannot just enjoy the summer day without having issues.  I wish I had a temperature control for outside too.  In the house we can keep him at his required 65 to 68 degrees and this works so well but he doesn’t want to be stuck in here all the time.

Advertisements

About fasmom

The adoptive mom to 12 wonderful children who are affected by Fetal Alcohol Spectrum Disorder and other issues including Reactive Attachment Disorder, bipolar, schizophrenia, CP, epilepsy and oh the list goes on...The thing is these children have taught me things about myself I never knew and would not have missed out on learning. Married to an amazing man and enjoying life on a sheep ranch.
This entry was posted in Adoption, Childhood Mental Health Issues, Fetal Alcohol Spectrum Disorder, Fetal Alcohol Syndrome, Foster Care, legal system, Reactive Attachment Disorder, Uncategorized and tagged , , , , , , , . Bookmark the permalink.

3 Responses to Wish I had a temperature control…

  1. Barbara says:

    This is the first time I have seen another mom talk about also having a child with this problem. Our five year old wants to be out all the time, and she cannot handle the heat/cold. When she was younger it was much worse. It is better as she gets older though – I hope you have the same experience.

  2. Sky Dancer says:

    There are “cooling vests” you could buy for your doodlebug to wear when it is “hot” outside. Try contacting your local Multiple Sclerosis Society or googling “cooling vests” online.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s