I know in the past I have talked about temperature in regards to emotional temperature in people with Fetal Alcohol Spectrum Disorder (FASD) but tonight I just need to mourn another thing that is not easy or at times fair for doodlebug. He loves to be outside and play with the other kids. It means so much to him to be able to ride a bike without training wheels, to be able to search for dinosaurs and to just be out in the air. He has among his many medical issues the inability to properly regulate his body temperature that is another issue from his brain damage from FASD. If he gets too cold his body temperature can drop dangerously and in the reverse if he gets too warm it can rise to a dangerous level. One of the issues when it raises is that he gets terrible nosebleeds and/or seizures.
Today the kids have all played outside and had so much fun. Doodlebug wanted to be out there so badly and did play for awhile. He came in and ended up with a half hour long nosebleed. Even with the ice packs and the cold bath it was so hard to get it to stop. Now he is so out of it he can barely function. I hate that he cannot just enjoy the summer day without having issues. I wish I had a temperature control for outside too. In the house we can keep him at his required 65 to 68 degrees and this works so well but he doesn’t want to be stuck in here all the time.