More needed than just a conference


How many of you get tired of going to town halls and conferences and waiting for something to be done or changed?  How many grants have you heard of that come and go with nothing ever being done or being changed? 

I know I am tired.  I am tired of seeing groups come and go in the FASD world.  Groups who promise things, promise hope and never deliver.  It becomes so we all feel jaded when we hear of another group or organization.  I am hoping to hear all of us who are living it to begin raising our voices.  What we are being given is not ENOUGH!  We need action.  We need to see these grants used for actual programs.  Programs that understand the needs of FASD people and their families. 

I am tired of reading “experts” who reprint generic special needs suggestions and pass them off as FASD interventions.  There are real suggestions out there.  I know that sites run by people who get it are there.  Theresa Kellerman, Liz and Jodee Kulp, FASlink, etc.  However what is published in most textbooks is not by these people.  We need to continue to speak out.  IF we all continue to raise our voices eventually we will be heard.  Grass roots efforts are where the change will come.  We cannot rely on these professional groups.  Let’s be honest it doesn’t matter as much to them.  They do not look into the eyes of our children or people with FASD. 

I am hoping that we all begin to stand up.  Get the message out there.  I know of so many brave and wonderful people who are speaking up.  Let’s encourage others to follow suit.  We can do it.  Don’t feel like it is impossible.  Remember the story of the child who stood on the beach throwing back in the starfish.  Perhaps this child couldn’t save them all but he could save the ones he got to.  I think this is true here.  We may not all be able to do everything or fix it all but we can still make a difference.  As long as we don’t try we know we won’t succeed.

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About fasmom

The adoptive mom to 12 wonderful children who are affected by Fetal Alcohol Spectrum Disorder and other issues including Reactive Attachment Disorder, bipolar, schizophrenia, CP, epilepsy and oh the list goes on...The thing is these children have taught me things about myself I never knew and would not have missed out on learning. Married to an amazing man and enjoying life on a sheep ranch.
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One Response to More needed than just a conference

  1. Errin Weigel says:

    There are a group of us in Canada who are working toward the creation of a national parent driven organization so that we can advocate for individuals and families living with FASD for the reasons you outline above. Nobody knows what our kids with FASD need better than we do. Unless you have lived with FASD you can not fully comprehend what the daily implications of living with FASD truly are. It is beyond imagination. We need to organize so that we will finally have a voice that is so strong that our governments and funding agencies and policy makers can no longer ignore us.

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